ACT

Active Community Case Management Tool

There are limited tools available to support registry-based care, and most RHD registrars are static, paper-based documents at the facility level. As a result, they lack the ability to track patients across the healthcare system and improve care and outcomes.

What strategies can be implemented to improve outcomes for individuals living with RHD, and how does ACT contribute to achieving this goal?

ACT is a cloud-based, dynamic RHD registry aimed at addressing four major barriers to care for RHD patients: the shortage of specialty providers, centralized resources, unstable supply chains, and insufficient quality data for programmatic improvement. It was intentionally designed to be user-friendly, providing healthcare workers with tools to manage their patients and dashboards to identify and scale best practices.

ACT provides a powerful tool to connect the global community, in order to identify best practices, drive innovation, and improve outcomes for people living with RHD around the world.

Connecting Community-Based Care: ACT provides tools that link these levels of healthcare, simplifying prophylaxis adherence for patients and providers. These include standardized registry enrollment, user-friendly patient summaries, active adherence support, and a simplified primary care view.

2,916 Active Patients

217 ACT Users

8 Registry Sites

2,916 Active Patients 217 ACT Users 8 Registry Sites

Project Sites: Uganda Heart Institute (UHI), Kitgum, Lira, Gulu, Mbara, Tororo, Kisoro

Project Aims:

  1. Develop and deploy a dynamic decentralized cloud-based RHD platform into the public health system in Uganda to facilitate the uptake of secondary prevention.

  2. Refine and test a novel echocardiographic navigational guidance system for rapid image acquisition and improved access to RHD diagnosis.

  3. Characterize and remediate barriers to the adoption of ADD-RHD technologies in Uganda and other low-resource countries.

In 2023, ACT was adopted as the national RHD registry for Uganda and is actively being used at primary and tertiary levels of the healthcare system.